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15 years ago 0 51 logo logo logo logo logo logo logo logo logo logo 0
I was reading Em's introduction and story of her husband's attempt at suicide and it really hit home. I can look back now  and try to rationally understand what happened when I made the decision to end my life, but when I was in the middle of it, there was nothing rational about my thinking at all. I guess in looking at it I can understand why people who have never been thru it, can't understand why someone would think that way. I mean if you saw me on the street you wouldn't have a clue that I would ever in my life consider something like that. I myself  never thought it would happen again. I'm sure continuing to educate people will continue to make a difference in the long run, but I don't think we will really change peoples minds until we get a cure or more effective treatment and I think that means more effective drugs and why shouldn't it. This iis a disease that causes actual changes in the chemistry of our brains. We have to adapt to side effects, but they aren't any worse than people who have to go thru drug therapy for cancer, diabetes, or other diseases. Right now I would rather be on medication for the rest of my life than go thru another episode again. don't want to put my family and friends thru it. Don't want to put myself thru it.
15 years ago 0 1288 logo logo logo logo logo logo logo logo logo logo 0
Goofy,
 
Great post. You've raised some great issues. It's always great to hear that your family is understanding and supportive.
 
 
Sylvie, Bilingual Health Educator
15 years ago 0 1044 logo logo logo logo logo logo logo logo logo logo 0
Ralph2  (this is part 2, I got cut off in my rampage on stigma below)
 
other issues that exist today.  I live in a state that is ranked 48 of 50 in it's treatment, care and funding of people with mental illenss.  I have a button that says "attitude is the real disability".  Ain't that the truth!
The last point I made is I think it is so important that the language we use reflect the person first.  Most days I feel like I am my depression/anxiety.  However, when discussing my issues or the topic I try to say a person with _________ (diabetes, depression, heart disease, bipolar disorder, cancer, etc.  We are acknowledging that we are people first.  We are not the issues health issues we have! 
That was all......sorry so long!  


15 years ago 0 1044 logo logo logo logo logo logo logo logo logo logo 0
Ralph 2, I'd really like to have this crystal ball and be able to answer your question.  I do know that history does speak volumes to the answer to your question.  Which I perceive to be:  Why all the negative stigma around someone who has a mental illness?  However, In my opinion, there are other reasons behind the behavior of the past and present and that is FEAR.  Fear of not knowing and of vulnerability. 
I worked for a number of years with people who had major depression and other mental illnesses.  Oh, how I wish I could go back and what different things I would do.  Seeing from the inside out changes ones perspective.  I don't think I slighted the people with whom I worked, but I could have been more efficient and effective.  
I do believe that advocacy is important in my recovery NOW.  When I was literally in the bed two years, advocacy was the furtherest thing from my mind.  I think there comes a time when we all have to advocate for those things which are important to us.  Things that impact my life are important!
I think the stigma that my family hangs on to is the most hurtful of all.  My brother saying to me just 3 weeks ago, "With your depression, you don't think straight".   I won't tell you my response as it is uncharacteristic of me as well as not publishable on the web page.  However, I did go on to tell him, that my depression was no different than his diabetes, both are chemical imbalances and both had to have ongoing lifetime treatment for us to be able to function and live in society.  (I cannot reflect the true tone or verbal exchange that resulted in his reaching this conclusion with me.)  However, I did say specifically at the end, that I didn't care if he accepted my depression on the textbook explanation or the visually presentation, either way, "don't say ugly things to me, I do not deserve it".  I went around strutting my stuff all day, because I stood up for me and I stood up for depression and I stood up for the combination.  
 I do advocate for people with mental illnesses through an organization.  I took my son  to a recent event as he had difficulty understanding  why I could be smiling and depressed at the same time among many other things.  He's 29 and an attorney.  He wanted to understand, but couldn't grasp the concepts from the text books.  lol, he and I both have this misconception about reading and knowing.  Anyway, he bought a dollar rubber-band type bracelet that says NAMI on one side and 1 in 5 on the other side.  He wears it with his suits to court.  Talking about making a mother proud - for many reasons.  He's advocating, it is a sign he's understanding, and he's not worried about someone thinking it may be him. Sending out the letters to over 50 family and friends advocating donations was a huge step for me.  First, publicly admitting MY problem and asking them to advocate for people with mental illness as well.  It was a sign of my having accepted my depression and facing it head on (in my mind). 
 I know I haven't answered your question, but I gave you some research to do on history - looking back to witch hunts (not saying their aren't real witches for those of you who follow that religious belief), how people with mental illness and other "inflictions" were treated, institutionalized, locked away, imprisoned, etc.  These things occurred in the US until I believe the 1960's when a law that deisnsitutionalized people with mental illness.  They passed this law without resources in place to assist people in living/adjusting to the "real" world and it created a mess (a lot of still exists today) with homelessness, treatment availability and variou
15 years ago 0 3043 logo logo logo logo logo logo logo logo logo logo 0
Hi Ralp2
 
You are bang on the ball. Unfortunately most people are pig ignorant, obsessed with themselves only, and can't or won't empathise or understand. Why did I have to pluck up courage to tell my family and my doctor that I am suffering from depression, why did I lie when I rang in sick to work, saying I had a cold or a migraine when I just just just could not face going in.....the stigma, that's why. I felt ashamed and weak, which of course just makes things worse. If I suffered from a physical ailment I wouldn't feel that way at all. It is unfair.
 
 
15 years ago 0 201 logo logo logo logo logo logo logo logo logo logo 0
i relate entirely and it really hurts when it is your own family that does the disavowing or the avoiding or the minimizing or the denying - it hurts like hell and it raises so many questions and i'm sure my non-existent self-esteem is a direct result. it's like those that can walk but still need that special parking permit. i hate that people don't get it! if you don't have it you don't understand it - try as you may. that's why we have to stick together and advocate for nami or the like like goofy has. we have to take more of a stand i guess. i know there are many many times that i can't control my feelings. i wish to hell i could. i try and try and try. my son has even said that i was a big ball of emotion
15 years ago 0 955 logo logo logo logo logo logo logo logo logo logo 0
Raph2,
 
You raised some really important points in this post!
 
The way society constructs a definition of "mental illness" can be an incredibly different from the actual experience. Often people interpret "mental illness" as something happening inside an individual's head. From this, people often assume that individuals suffering from a mental illness always have control over their own thoughts or feelings. However, this might not always be the case.
 
Members, what are your reactions to Ralp2's post?
Sarah, Health Educator
15 years ago 0 51 logo logo logo logo logo logo logo logo logo logo 0
   Why is it when someone is battling an illness such as cancer, diabetes, heart disease all their efforts are lauded as they fight courageously against their disease. Mention "mental illness" and you are treated as if it is your own fault that you are having the problems you are. This even though more and more studies show that there are genetic traits and chemical changes in the brain that cause the problems we are having. The perception of the disease itself causes as much stress, as we try to interact with society, as the problems that started the ball rolling in the first place. Is it any wonder, we have relapses and struggle to stay well?  

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